Lesley Stephen
19th May 2022

Clinical Trials Day

When I was diagnosed out of the blue in March 2014 with advanced breast cancer, I never thought that I would be living with a good quality of life 8 years on. I’m Her2 positive, and spent my first 18 months post diagnosis rattling through all the standard treatments, (including an expensive self-funded spell on Kadcyla before it was approved in Scotland – and which didn’t work,).

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Lesley Stephen
10th February 2022

Life on a Phase 1 clinical trial

When I was told in late 2015 that I’d secured the last place on a phase 1 clinical trial, I didn’t in my wildest dreams think I’d end up still on that trial almost four years later. I had been diagnosed de novo (another unnecessarily complicated medical term which means ‘from the start’) in 2014 with Her2 breast cancer that had already spread to my liver, lungs and bones – then a year later into my brain.

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Joanna Trials
9th March 2021

Trials Experience: Joanna

When were you diagnosed?I was told over the phone by my GP on Friday 13th Oct 2017 that it looked like my cancer was back after I asked for some tests on rib pain. I had no idea this could be a possibility!

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24th February 2021

Trial Experiences: Kate

When were you diagnosed?Feb 28th 2019 - was diagnosed with stage 3 ER+ breast cancer. March 13th 2019 - was told it had spread to my bones and possibly liver.

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28th January 2021

Patient Testimony: Bone Density Scan

Bone Density Scans or Dual Energy X-Ray Absorptiometry (DEXA) scans, use a low dose of X-ray to establish the density (or strength) of bones. Bone density scans are used to diagnose or assess the risk of osteoporosis, a condition that makes bones weak and likely to break (fracture).

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Trial experiences
16th October 2020

Trial Experiences: Pamela

When were you diagnosed ? My original diagnosis was in July 2012 after a routine mammogram.

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23rd May 2020

The essential restart of clinical trials to give secondary breast cancer patients hope

It has been widely reported in the last week that in the UK recruitment to clinical trials for cancer including secondary breast cancer have been stopped because of Covid-19. As a result, many stage 4 patients are missing out on potentially life-saving access to drugs that could keep them alive for longer.

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21st April 2020

The Impact of Covid-19 On Trials & Medical Research

The Impact of Covid-19 On Trials & Medical ResearchLast month, in the UK the NIHR Clinical Research Network announced it is pausing the site set up of any new or ongoing studies at NHS and social care sites that are not nationally prioritised COVID-19 studies. While this is of course necessary to enable the research workforce to focus on combatting the pandemic or redeployment to frontline care, the implications for secondary breast cancer patients are huge.

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22nd January 2020

Why are recruitment rates for trials dropping?

Why isn’t every patient with cancer offered a clinical trial? Why are my six little pills not available to every metastatic Her2 patient now?

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