What has been your treatment Journey?
My treatment so far has been 6 sessions of 3 weekly chemotherapy, I had docetaxal, carboplatin and herceptin. I had 7 infusions of herceptin in total before it damaged my heart. After chemo, I had a single mastectomy, this was February 2018. I had radiotherapy in April/May. I started zoladex and letrazol in March and April of 2018. I now also take a concoction of cardiac meds to help my heart. I had liver MRI's every 12 weeks. I had a complete response to the chemotherapy in my liver and just over 2 years later it still hasn't dared show up again. I have recently been moved on to 6 monthly MRI scans and annual nuclear heart scans.
What would have helped make your journey so far easier?
What would have made my journey easier would have been a dedicated secondary breast care nurse at my hospital. We do have one now but it very much felt like secondary breast cancer was the elephant in the room when attending support groups or clinics. My local Maggie's was quick to recognise this and set up a living with secondaries group.
At first I was apprehensive that joining a support group might be full of doom and gloom. It has its moments but I can promise you I have laughed more than I have cried. It's hard when you meet friends through your diagnosis and you see them going through hard times or you lose them. I sometimes feel guilty celebrating stable results when others are experiencing progression. It's not like that though, we are all there for each other for the highs and the lows. No matter what.
What's your favourite holiday destination?
My favourite holiday destination is grannies heilan hame in Embo.
Can you recommend any good films or TV shows?
I like to watch comedies or psychological thrillers, but I am notorious for falling asleep during films. Even in the cinema.