Make 2nds Count has joined with the University of Sussex, Professors Dame Lesley Fallowfield to fund a unique project that looks at the real picture of what it means to be living with metastatic breast cancer - LIMBER patient survey.
If you have secondary breast cancer, please share your experience here so we can help make change and a difference.
We are asking patients with secondary breast cancer to tell us about their experience of: information shared at diagnosis; issues with treatment options; support from health care professionals, family and friends; and the impact on wellbeing and what life is with caring and work responsibilities.
Secondary breast cancer diagnosis and care is complex and the needs of every person is different.
Studies have shown there are considerable knowledge gaps in the diagnosis and management of secondary breast cancer.
One of our aims as a charity is to fund dedicated research to improve treatment lines and better understand the impact on quality of life for those living with this incurable disease.
We will share the findings with patients, their friends and families, clinicians and breast cancer organisations and continue to give support and hope to those affected by secondary breast cancer.
Thank you also to Professor Carlo Palmeiri, Professor of Translational Oncology & Medical Oncologist at Liverpool and Jo Taylor, founder of After Breast Cancer Diagnosis UK & METUPUK for their support of the project.