I joined the Make 2nds Count board in 2019 having been amazed by what the charity had achieved in its first year thanks to the determined commitment of its founders and its fantastic volunteers & donors. It’s an honour to have been elected by my fellow trustees as Chair of the Board in November 2019 to help grow the charity into a sustainable research fund and support for patients & families affected by Secondary Breast Cancer.
I’ve worked with start-ups for the last 20 years in marketing and operational roles and have lots of experience running boards and committees in my current role as COO of the Mobile Ecosystem Forum. In 2014 I was diagnosed with early stage primary breast cancer. Despite this experience, I had shockingly never heard of secondary breast cancer until I heard about Lisa’s story from a friend which highlights through personal insight why education and greater awareness of this incurable disease is so vital.
Interesting fact – My first ever sponsored walk was the Kiltwalk for Make 2nds Count which I did with my beloved dog Jackpot the Parson Russell Terrier
I have been involved with Make 2nds Count since August 2019. I have known both Lisa and Euan for many years and I was very aware of the charity and its achievements. I was therefore hugely honoured to be asked to get involved.
I have a background in Aerospace and have set up and sold a variety of companies over the years, so I bring some finance, business and management skills to the charity. I believe that the aims and ambitions for Make 2nds Count are hugely important in terms of raising awareness, supporting people with the condition and in funding much needed research into finding a cure. I had no idea just how devastating this disease is and was shocked to learn just how unaware most of us are about it and the issues facing families living with the condition.
I have been amazed in board meetings to learn what is being done by the charity and am very excited to be involved and feel part of it
Interesting Fact: I set up the stand comedy club way back in the day
Lisa and I married in 2010 and, together, we have one son, Cameron. By day, I am a Partner in a Scottish law firm specialising in Private Client work, advising clients in all areas of asset protection, succession and tax planning during lifetime and on death, with particular emphasis on the drafting of wills and trusts, dealing with issues arising from lack of capacity, providing assistance to business owners in relation to tax mitigation and succession and the administration of estates and trusts. Handily, I also specialise in charity law!
I met Lisa whilst performing in the amateur musical theatre scene in Edinburgh, during rehearsals of Me and My Girl (the theme song of which we walked back down the aisle to!). Since Lisa's diagnosis, it has been an absolute passion of hers to set up a charity and I could not be more proud to be at the centre of Make 2nds Count, ensuring the charity builds on the success it has already achieved.
Interesting Fact: I am a former president of the European Youth Parliament and I once fainted on camera whilst being recorded for a television quiz show!
Prof. Cameron’s first degree was in mathematics from the University of Cambridge, and he received his medical degree in 1986 from St. George’s Hospital Medical School, London. After completing a fellowship and MSc in Clinical Oncology at the University of Edinburgh, he received a M.D. with distinction in 1997 and completed his training as a medical oncologist that same year. He is currently Professor of Oncology at Edinburgh University, and works in NHS Lothian’s cancer centre treating breast cancer patients, and the joint lead for the Edinburgh Experimental Cancer Medicine Centre. He is currently also the lead for systemic anti-cancer therapy in NHS Lothian, though he will shortly demit from this role to take up a part/time deputy director role within the Scottish Government funded Innovative Health Care Delivery Programme (IHDP) which seeks to improve on access to, and enhance the use of, routine data on cancer patients within NHS Scotland. He also chairs the Scottish Cancer SACT data group, off label cancer medicines’ group and is Scottish Government R&D (CSO) clinical cancer research champion.
Internationally he is the chair of the Breast International Group, a Brussels-based umbrella group of 57 worldwide academic/not-for-profit breast cancer trials’ groups, and the vice chair of the steering group of the Oxford-based Early Breast Cancer Clinical Trialists’ Group.
He is active in a number of current and past clinical trials in breast cancer. He was a member of the executive committee of the HERA adjuvant herceptin trial, and a member of the steering group for several UK adjuvant breast cancer trials, as well as the BIG APHINITY, ALTTO/NEO_ALTTO, BRAVO and AURORA studies and other international breast cancer studies. He was chief investigator on the UK trial adjuvant breast cancer trial, TACT2, and of BEATRICE, a global trial that tested the possible benefit of adjuvant bevacizumab in triple negative breast cancer, and serves on the iDMC of a number of clinical trials in breast and other cancers. He is a present and past member of several cancer research funding committees including INCA PHRC, PAIR (Sein), Cancer Research UK Science committee, Cancer Research UK Clinical Research Committee, and from time to time various NIHR funding bodies including EME, clinical trials fellows committee. He is on the advisory board of the ICR and Glasgow Clinical Trials Units, the Bordeaux Institute Bergonie SIRIC and the Cardiff Cancer Clinical and Translational Research programmes.
I was diagnosed with metastatic breast cancer, out of the blue, in March 2014. Previously I had been a self-employed communications consultant, living in Edinburgh with my 4 children. The shock and grief I felt when being given the news of my diagnosis, and likely 1-2 years life expectancy, was indescribable.
After a rollercoaster first 18 months of treatment, when no treatment seemed to work, I got the last slot on a Phase 1 clinical trial at the Glasgow Beatson Cancer Centre. That was over 4 years ago, and I am still on it living a great life with few side effects.
Being so ‘well’ has enabled me to become a patient advocate, campaigning to get a better deal for metastatic breast cancer patients who are often ignored when it comes to research, treatments and support. I have worked with CRUK, Breast Cancer Now, the NCRI, and am a member of ICPV and METUP UK amongst other patient focused groups. My knowledge of MBC has increased hugely as a result and I am passionate about enabling more patients to access new treatments and clinical trials.
When Make 2nds Count started I was therefore delighted to join the Trustees in order to represent and be the voice of patients, and to help improve the lives of us living with the disease.
Interesting Fact: I used to do a lot of hiking and climbing and have been at altitudes of over 19,000 feet many times, including to the top of Kilimanjaro in Africa, Acancagua in Argentina and Cotopaxi in Chile.